Wordless Wednesday

Proud to be her mama!

Linda

Wordless Wednesday- Cheers!

Ideas/Advice please

For the past 3 weeks Lila hasn't been able to take a nap after she finished physical therapy. The first week I was extremely frustrated- I thought she was just fighting sleep- which she has an unbelievable ability to do. Last week I started thinking that she might be over-stimulated and this week I'm convinced of it. Today it really seemed like she wanted to go to sleep but she just couldn't. I rocked her for a long time and she was being still. (Normally when she's fighting sleep she moves around and tries to keep herself awake.) At one point she even said, "Me cry." I said "No, Lila, you're ok, you're not going to cry." She kept saying "Me cry" and then finally she said, " It's ok, Lila, it's ok". It's very odd behavior for her. She has never once before said that she was going to cry. After I held her for almost an hour I put her in her crib to see if she would fall asleep on her own. (We normally don't do this because every single time we put her in her crib when she's still awake she gets naked.) Today she laid there for almost 30 minutes, tossing and turning. Then she started crying. By this time it was too late in the day for her to take a nap so I just brought her back downstairs with me. She was Miss Crankypants, of course, because she was so tired.

Anyone have a similar experience? It seems like time takes care of it- her appointment was from 1:00-2:00 and by 4:45 she probably could have gone to sleep but there was no point in that. Any opinions/suggestions are welcome. We can't keep this up. She's the Meltdown Queen from 2:30 until she goes to bed. Dinner is a nightmare because she's practically sleep-eating. The simple answer would be to change Lila's therapy to morning appointments but the wait list at our therapy center was at 65 the last time I checked. Maybe some type of soothing/relaxation techniques? I have e-mailed our OT and am waiting to hear back from her.

Help!

If you can't say something nice.........

You know that line in the movie Steel Magnolias, "If you don't have anything nice to say about anybody, come sit by me!" hahahahahaha

I absolutely love that movie and I love that line. It is funny, after all. Except when the person "not saying something nice" is talking about your kid. Last week Lila and I were at a playground that's right outside of Starbucks. Lila and I were having a picnic lunch after we played. There were 2 women sitting at a table nearby that had been watching us since we arrived. As we were eating one of them asked me, "Does she have Down Syndrome?" I couldn't really get a feel for where that question was heading so I answered in a cheerful voice, "Yes, she does." The response to that? "It looks like it." While it wasn't really a rude comment it sure did smart.

This kid that looks like she has Down Syndrome, uh, because she does have Down Syndrome, is the light of my life. She's bright, sensitive, funny, feisty, adorable, lovable and full of joy. Your loss, my dear, your loss.

Proud to be her mama~

Linda

Blog award

I was given a blog award! Thank you so much, Chrystal. I hate to admit that I've been given 2 other awards and never passed them on. Sorry about that. I get a bit self-conscious when it comes to this kind of thing. I'd like to pass this award on to Jess Wilson who is the author of Diary of a Mom. Her writing inspires me and challenges me.

Thanks, Chrystal. I'm honored that you passed this award along to me.

Hugs!

My current dilemma

So here's the situation. My fish oil says it's odorless and burp-free. Total lies. I have this horrible taste in my mouth. To cover the taste I keep eating chocolate covered almonds. Hmmm......

This is my biggest problem so far today. Life is good.

A long time coming........

Busy days

Life sure gets in the way of blogging. : ) We have been having fun, fun, fun. Last Thursday we had a playgroup at our house- I didn't get very many pictures but hope to at the next one. Here's what I have:

Josie enjoying a donut

Payton on her shopping spree!

Roxy's hoping Lila doesn't want her chair back 'cuz she's not wanting to give it up!

Roxy and Lila playing ring around the rosy!

On Saturday we went with some friends to the library. Again, not many pictures as I was busy chasing Miss Lila around- she didn't want to sit still!

Sammi, Lila, Olivia and Ashley- missed getting a pic of Riley!

Hey Olivia- I'm ready to get out of here- want to come with me?

On Tuesday we went to PT and Lila showed off her skills walking unassisted down the hall with Miss Carla.

After we got home from PT Lila refused to take a nap- I literally tried everything I could think of for 2 hours to get her to go to sleep. I finally gave up, brought her downstairs, and of course she fell asleep on the floor. Kids!


We are so excited that Miss Lila is walking.

We are, however, very concerned about the way she's walking. Her left foot turns in a lot.(Check out Lila's left foot in the picture of her and Roxy playing Ring around the Rosie- you can really see it there) Our PT thinks it might be a hip problem- we are taking her to a specialist on Long Island at the end of the month- hopefully we will get some answers then. That might be the way she will always walk, and if so, that's fine. We just want to make sure that we do everything possible to get her all the help she needs. We'll see.

This morning was Lila's first experience with Meals on Wheels. She didn't say much about it but I have to assume she loved it. : ) I just love the smiles she puts on people's faces.

We leave tomorrow for New York for a graduation party and get-togethers with Nick's family. It should be a good time. Hope everyone has a safe and happy 4th of July weekend!

Hugs~

Linda