This cute boy? His name is Luke B. Or as Lila says, "Wuke B". Luke and Lila have been in the same preschool class since last year. Luke was born with a very rare neurological condition called left hemimegalencephaly (HME) (which pretty much means "half enlarged brain"). This disorder causes seizures and developmental delays. Since it's the left side of his brain that has the enlarged ventricles, his right side is much weaker, almost paralyzed. Kids that have HME all suffer from seizures. Some much more severe than others. Luke is one of the lucky ones that has great seizure control with just 1 medication. There are some kids that are on numerous medications and some that have had a radical surgery to remove the "bad" portion of the brain. Luke has been seizure free for over 1 year!
There is a great foundation, The Hemispherectomy Foundation, established by a family of a little girl who had to have a portion of her brain removed. The Foundation supports the kids and families that are going through the process of surgery. They are currently selling Christmas cards, created by kids that have HME. Take a look for yourself! I think you're going to love them.
Please buy a box or two and support Lila's friend!