Father's Day recap:
We had biscuits and gravy for breakfast,
then Nick and Lexi took a nap
and Lila hung out reading books while I made red sauce
and marinated the steaks for dinner.
Then we headed out to "Paint The Town"
for a local Down Syndrome event.
The activity was to paint a picture
of an owl on a canvas.
The girls were a bit young
but we made it work!
Listening to an "owl" story
outside in the courtyard.
And splashed among the unique creations
were little pearls of wisdom.
What a fabulous place!
We met some lovely people and had a great time.
I can't wait to hang these up!
It will be a busy week.
Tomorrow is the inspection of the house we are buying.
Nick will be at the house with our realtor
and the inspector the entire time.
The girls and I will head over
after Tif is finished working.
She hasn't seen the house yet!
I will try to get some pictures while we are there.
Also, the house we are currently leasing
is going back on the market tomorrow.
And Lexi has OT.
At least we won't be bored!
Last but not least we will find out
what Lila's IGG levels were last Thursday
when we went to get her IVIG treatment.
She wasn't able to get her treatment that day.
There was no way to tell exactly how much
treatment she had received the previous week
and the pharmacist wasn't comfortable
with "guessing" how much treatment to give her.
The doctor will call tomorrow
with her levels and a game plan.
Wish us luck.
Ever since Lila's surgery
she has been on sensory overload.
We finally took her hospital bands off last night.
She doesn't want us near her port.
We need to take the bandage off but
she seriously freaks out when we talk about it.
When she is changing her clothes she
watches us as if she thinks we are going to
sneak up on her and rip the bandage off.
She's on restricted activities right now
so fighting with her to get the bandage off
might not be a good idea.
I will call the surgeon tomorrow and find out
what she wants us to do.
We may bring Lila in and have them
take the bandage off.
Unfortunately, we need extra people
to hold her down.
The good news is that we now have
a prescription for EMLA cream
so when it's time to access her port
we will be ready.
It will all work out.
We are blessed in so many ways and we know
that these issues we are having
are minor compared to the problems of others.
Happy Fathers Day!
I am blessed to have an amazing dad.
I am very proud to be his daughter.
I am also so thankful for my awesome husband
who takes such good care of us every single day.
We hope everyone had a great day today.
We sure did!